The Effect of Sickle Cell Disease in Nigeria: Why Awareness Matters By Noella Apochi Sickle-Cell Advocate & Public Health Professional

Nigeria has one of the highest burdens of sickle cell disease (SCD) in the world. With approximately 1 in 4 Nigerians carrying the sickle cell gene and over 150,000 babies born with SCD each year, increasing awareness is essential to saving lives.

What is Sickle Cell Disease?

Sickle cell disease is an inherited blood disorder that affects haemoglobin, causing red blood cells to become hard, sticky, and sickle-shaped.

These abnormal cells can block blood flow, leading to pain and damage to organs over time. SCD is inherited from both parents and is not contagious.

Common Effects of Sickle Cell Disease

📍 People living with SCD may experience:

• Pain crises affecting the bones, joints, chest, or abdomen.

• Anaemia, causing fatigue and weakness.

• Frequent infections due to a weakened immune system.

• Swelling of the hands and feet.

• Damage to organs such as the lungs, kidneys, spleen, heart, and eyes.

• Increased risk of stroke.

• Delayed growth and development in children.

Every person's experience is different, making regular medical care essential.

Understanding the Different Types

Sickle cell disease has several forms, including:

📍 HbSS
📍 HbSC
📍 HbSβ⁰Thalassaemia
📍 HbSβ⁺Thalassaemia
📍 HbSE
📍 HbSO-Arab
📍 HbSD

While some forms are more severe than others, all require proper medical monitoring and care.

How is Sickle Cell Disease Inherited?

When both parents carry the sickle cell trait (AS), each pregnancy has:

• 25% chance of a child with sickle cell disease (SS)

• 50% chance of a child who is a carrier (AS)

• 25% chance of a child with normal haemoglobin (AA)

This is why genotype testing before marriage and genetic counselling are so important.

Living Well with Sickle Cell Disease

Although there is no universal cure, many people with SCD live healthy and productive lives through:

📍 Taking prescribed medications.
📍 Drinking plenty of water.
📍 Eating a balanced diet.
📍 Staying up to date with vaccinations.
📍 Avoiding extreme temperatures.
📍 Attending regular medical check-ups.

📍 Final Thoughts

Sickle cell disease is more than a medical condition it is a public health issue that requires awareness, compassion, and collective action. By promoting genotype testing, early diagnosis, and access to quality healthcare, we can improve lives and reduce the burden of SCD in Nigeria.

Knowledge saves lives. Together, we can build a healthier future for every Sickle Cell Warrior.

About the Author

Noella Apochi is a Sickle Cell Advocate and Public Health Professional with a passion for improving the lives of individuals and families affected by sickle cell disease.

Through health education, advocacy, and community engagement, she promotes genotype awareness, early diagnosis, evidence-based care, and policies that support better health outcomes.

She believes that informed communities are empowered communities, and that together, we can build a future where every Sickle Cell Warrior has the opportunity to thrive.